3 Years of Lumpia

For the third year in a row I've taken an annual Thanksgiving Day picture of Romy eating lumpia, a filipino egg roll. It's so awesome to see how much she's grown! I am so very thankful for this wonderful little lady and she continues to be the very best thing that has ever happened to me! I love you so much my sweet girl!

 2008

                                       

         

 2009

2010

Halloween and a g-tube update!

Romy had a  great Halloween, she showed a little bit more interest in it this year than last year but was still pretty unimpressed. She's not the biggest fan of candy either but she did enjoy riding the wagon all around the neighborhood. Ray requested for her to be a pirate, so that is what she went as. Unfortunately due to constant deployments and training, Ray has never been home for Halloween since Romy was born. Boooo! Anyway here's a few pictures of the festivities:

Grandma and 2 out of 3 of her grand babies.

I love her facial expression in this one!

Smooches for Grandma!

Romy and all her booty!

Romy also recently had an endoscopy. It showed motility issues, meaning that her esophagus muscles have a hard time regulating how she swallows. In fact the muscle that joins her esophagus and stomach hardly seems to be working. This could very well be why she doesn't eat much. However, there were no signs of reflux which is a great thing but kind of puzzling at the same time. Unfortunately there is no cure for this and it may or may not get worse or better over time. It's one of those crappy 'wait and see' situations. 

 As far as the g-tube goes it has been completely left up to us. Apparently Romy is actually on the growth curve for a child with Cerebral Palsy. However, they only have charts for those with quadriplegia and not diplegia. So we're kind of stuck in g-tube limbo. I don't want her to get one if it isn't necessary but i also think that if it won't hurt her and it may help her then we should go for it. So as of now, I'm not really sure which way to go with this. It's all driving me nuts. Please pray for us!