Tuesday, August 10, 2010

Recent Romy Pictures




I really like that last picture, the one with her sleeping in her high chair. She hardly ever does that and it just makes me smile for some reason. I also love her in cute little dresses. I adore having a little girl.

It seems like she's been growing up so much lately. She's really starting to like drawing, painting and playing with play-doh. We've been working on her fine motor a lot lately so all that stuff is great practice. She likes to eat play-doh too. Anyone know how many calories in play-doh? Anyone?

She had another genetics evaluation recently. She's pretty much been cleared of any kind of genetic abnormality but we might revisit it in a few years if the concerns are still there. Hallelujah! However, they do want to do some metabolic testing. Her geneticist is pretty sure there isn't a problem but he would like to rule it out indefinitely. Her poor growth is probably due to her prematurity which caused  her CP, which in turn affects her eating which then makes her the smallest 2.5 year old without a form of dwarfism known to man.

There has been more g-tube talk. Now her neurologist is worried. We FINALLY have a GI appointment. We've literally been waiting a year for one. I'm pretty sure he/she will want to go forward with it and honestly, I do too. Her growth has been non-existent and at 2 and half years old it's a pretty vital time for brain development. I don't have much else to say on the matter as I'm not sure how I feel about it just yet. I know it's best but it's still a scary step.

Other than that, she's doing great. The other day my niece was telling Romy how adorable and cute she was and do you know what my conceited little girl said? "I know." My Mom said that that was always my reply as a child too. I could not stop laughing. Sure she might be a tad vain, but she IS super adorable and it's also two connected words!  Hooray for conceited development!